The stories below are from Australia’s community of carers and other Australians who acknowledge and appreciate their remarkable efforts.
Child with a disability
l care for my partner and l am strong believer in the old saying what goes around comes around.
l do what l can to care and look after Pete the way l would expect some one to care and look after me.
I'm part time carer / full time guardian for my 32 yr old daughter who has down syndrome, I'm a single mum for 15 yrs now. Tho she is in supported accommodation due to my ill health n lack of gaining support to keep us together . This has become positive way for us to live. We have regular contact via phone, n weekend visits .. Why do I care - god given duty he gave me a gift and she is my daughter she has various health issues, but being Diabetic type 1 means I have overseen her condition for 21 yrs now. She tells everyone to ring mum if they wanna know anything cause " Mum Knows best"
Caring is like breathing a deep pure breath. It expresses our humanity, it makes us all strong together, and links us with the rest of society. Without supporting or caring for each other, life holds little joy, just isolation. We are all connected, and those lucky enough to be able to express this through caring are blessed. After all, the carer can easily become the "Care-ee".
My husband Trevor, had a massive stroke 21 years ago, he spent 3 months in Toowoomba base Hospital, and they had to teach him how to sit up, and stand and then walk, with the aide of a walking stick. He has no use of his left arm and hand and can only walk on his left leg, by moving the leg from the hip. He can't walk far and has to use the wheelchair. We were in the middle of a big drought on our farm when Trevor had the stroke, so things were very hard for some time. Our family were a wonderful support for Trevor and I, without which we wouldn't be still on our farm.
I started caring for my partner when he first moved in with me in 2008. I was only 23 at the time and unsure of what I could do to assist him through his mental illness and addictions. Through caring for him I have gained an understanding of how addiction and mental illness is so entwined and needs to be treated together with constant support, love, guidance, and the correct treatment. 10 Years later and I am still caring for my now husband. I care because I love him, he is worth every hard day and night, and he brings me joy and happiness just being here with me and seeing him smile.
My partner had a major heart attack and aquired brain injury in Jan 18. It's not been a long time but for us it's been a enormous change and struggle to get the assistance we need, i'm his carer because no one else is going to step up and fight for our quality of living day to day, week to week, month by month. At 43 years old this is not something we thought about, or lives have stopped while we deal with this...more information and help needs to be available to all carers.
I care for my 6 year old son that has multiple disabilities.
Jacobs syndrome, ADHD. Autism and conduct disorder.
Even with the best team of professionals, my son is a rare and extremely complex case that nobody has answers for.
So why do I care ?
I am my sons only voice. I am his only strength to fight for a better life for him.
My motto is Giving up is NOT a option!
I am not a Marter , I am a Mother who simply just wants a better life for their child.
My husband gas Vascular Dementia I looked after him for nearly 5 years then I crashed with Bells Palsy no family support available so he had to go into full care.
Once I was back on track I visited nearly every 2nd day took him out on day trips and as time progressed and I watch the appalling behaviour of some staff members cleaner included and because we dare save some money the government then wanted their share so had to pay just on $100
The food disgrace our neighbours dogs were better.
I could not sit by and watch all this so NOW have brought him back home difficult as
I am a carer for my son he is a double transplant recipient as well as has trouble just living ,he has server anxiety and has trouble with doing most things that other people take for granted,he is 48 years old and is inneed of my help to do most things ,for the last 9 years since his dad died i have been his only carer ,i,m 70 in january next year so it can be very hard on both of us,i do this because i love my son and he loves me so we stick together and try to help each other ,carering is i job that takes on lots of different things and at times it can get very hard .
Ive been a carer for over 30 years of various family members through various issues. car crash/cancer/drug addiction/bipolar. not to mention the fights and battles for help that never comes. Why do I care ?? because they were family If I didn't who would ?? Now 3 of the 4 family members are dead. Now I find I need care. Who will care for a carer ?? no one it seems. I dont qualify
Its participation in Joy, love, Hope, shared smiles and improved quality of life for one + everyone around them.
I am a carer for an elderly parent and a Foster childCarer Support person. There is no joy in the world comparable to seeing someone who couldn't do things for years suddenly take back their independence and see real hope of a future without fear and failure being the first words to come to mind. Resilient recipients who grab a hold of this are such a joy. Their new found self esteem and happiness spills over and brings satisfaction to all, that money couldn't buy even if it tried.
I was carer for my husband for six years until he died in 2009. He had dementia and it was the most distressing, debilitating time of our life together. I know firsthand the pain Carers experience watching a loved one change into someone they don’t know. My life was put on hold. I had moral, emotional, physical support from family and Carers Qld. It prevented me from falling apart.
I empathise with and understand the journey Carers find themselves on. I have nothing but praise for them. Sometimes all they need is someone to listen.
I care for my elderly parents as well as I possibly can because it's the right thing to do as well as the desire to see them happy and supported in their old age. It also gives me a great sense of achievement to know that I can help when they are so in need. Elderly people also prefer as much as possible their family to care for them if they can as it removes fear and anxiety from their life if they can depend on someone for their needs.
Why wouldn't I care? My son didn't choose to be born with a disability but he faces challenges every day. I will provide whatever support I can for him so that he reaches his potential in life. Sure, this has had an impact on our family financially and emotionally, I no longer work full time, we relocated closer to services, our social life has changed, we plan our outings more carefully, there are more appointments to attend and worries about fitting in at school, but if I didn't make these sacrifices, things would be much worse. I care because it is what my son deserves.
I have two amazing children who are Autistic. I care for them because they are my world, my love and they are amazing. The world is a better place because they are here, they make others smile, are helpful and caring, and I’m honoured to be their mum
Jody Hamilton Kincaid
Simply because I love him. My husband now loves with PTSD and will never return to work as a direct result of his Volunteer CFA duties on Black Saturday. We have adapted our lives, eating style, tv/movie veiwing, social activities and general routines as a result, but we wirk well as a team and I am blessed with that. Sadly we are about to snuff out another life dream and sell our rural plot to move into town. He simply cannot manage, summer is a nightmare, and smoke on the horizon is paralyzing. So town we go......Carers week is amazing, thank you for reading. Jody
We have been married for 53 years. My husband John has lung problems and is on oxygen 24/7. This is the ‘in sickness’ part of our wedding vows. I look after him except for 3 times a week when OzCare ladies come to shower him. Luckily we don’t have lots of problems and every day, after lunch, I go into another room to watch Netflix while he watches Foxtel. Gives us a daily break. It’s just like respite for a couple of hours.
I am a carer to my 2 boys my eldest is 10 and has had excema that covers his entire body since birth coupled with life threatening allergies and 75% deaf i currently receive a carers payment for him, my second child is 7 and has adhd and odd my husband and i are lucky to make a week without him being sent home from school we both work i am only part time but work for me is my only outlet in the last 3 weeks my son was suspended 3 times we live in a very remote area on an island which you can only fly on and off and have no support as family live elsewhere its a real challenge at times
Carers contribute so much to the social and economic wellbeing of our communities and Australia as a whole. It's so important that we value and support carers for the critical role they play. Their selfless and dedicated work is so often overlooked, we need to make sure we look after our carers!
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National Carers Week 2018 is an initiative of Carers Australia and is funded by the Australian Government Department of Social Services